Ideally your answer is a sub that you are currently posting to but few others are posting to.
The dragon communities
[email protected]
[email protected]
[email protected]
[email protected]I’m active on one but not the others, and I have a semblance of a plan.
i used to think dragons were cool before Drag came along
Still are, that dumbstick doesn’t change that
I miss standupcomedy and evilautistm but I’m not running them.
c/snackexchange
I’m the only poster but don’t want to spam too much and look like a scammer.
Even though I’m probably never gonna contribute, I hope this takes off.
I miss houseplant content
do we have a gardening subreddit? surely they also have some plants indoors
China time, it’s all about bad knockoff watches.
Another /r PokemonTTRPG would be nice.
In general i miss all the TTRPG communities
South Africa
&
Homelab
Thanks, I’m active on there it’s pretty nice already. Keen to see it grow more
Am I doing it right?
Musician fan groups are pretty neat. There’s probably not enough people here to recreate that yet. Heck, the biggest music groups are kind of dead.
I need someone to start posting a lot of celebrity snark. Like, low quality mean snark about rich cunts. I in no way will contribute, other than the odd carefully rationed upvote, but I will consume guiltlessly.
Hurry, now.
I wish there was a community for Warhammer Fantasy Role Play (WFRP). Discovered it few years ago and really love the system and the lore is both gritty and ridiculous-over-the-top-fun.
/r/starlink
looks like shit
I love these kind of memes and try to actively post for a while now. I need to ask my Canadian friends at one point if I can mod that community, the only moderator is absent for a very long time now…
Love your posts there. Keep it up brethren 🫶🏽
oh I loved that sub in reddit! cool beans
New sub. This one’s great! My group chats are going to mute me.
As god intended.
Oh wow, I did not know I needed this in my life! New sub here.
Basically every regional community. Think towns and states. Those were some of my favorite communities to engage with
we gotta start broad and move local only as the population grows. so for example instead of Columbus you gotta start with Ohio. maybe Pittsburgh can hang out too
I came here to voice this opinion as well. It’s one of the only things I miss about the other site. I have found people on Mastodon attempting to fill that void with regional hashtags though. YMMV.
[email protected] or more specifically (for me at least) [email protected].
And when I tried to ask for information on some treatment it even earned me a downvote. Probably by someone sorting by scaled and not wanting that in their feed or so.
This is a really good idea. Someone in my family has a rare autoimmune disease (relapsing polychondritis), for which the only treatment is a drug (Methotrexate) which has lymphoma as a side effect. It’s a fairly rare disease, with only a small percent of sufferers. I should start a community for it.
Since methotrexate is the only tool allopathic doctors have, and since homeopathy is a snake oil industry, there’s a lot of “word of mouth” suggestions from people who’ve had success from a variety of approaches, some of which work for some people, others not. Low dose Naltrexone (off label), Plaquenil, and avoiding food allergies are things doctors aren’t going to recommend because there are few scientific studies in them - because, again, nobody fucking studies the rare diseases.
Communities are really valuable for sufferers of more rare diseases. I think many people casually downvote such off-label approaches because they think it’s some sort of anti-science, anti-allopathic medicine wackadoo, when in fact the diseases are so uncommon they’re practically unresearched and certainly no pharmaceutical companies are researching cures.
Yes! Lots of folks with chronic illness find themselves in a limbo where they can’t get decent treatment or often precise diagnosis. Crowdsourcing relief has mixed results, but in such circumstances reports of rigorous trial and error with various approaches is sometimes helpful in the absence of the sort of care a lot of Americans now can’t even hope for. I know this because I’ve been there. CIDP here since 2010.
Crowdsourcing has been a blessing in my journey to relieve chronic migraine. There’s a lot of misunderstanding and bad info out there, but at least it has given me options. Doctors have all fixated on blood pressure medication and abortives, which don’t work on me in the former, and the latter leaves me incapacitated when they do work.
Going down the rabbit hole of online discussions helped me figure out I have histamine intolerance, which I was able to verify scientifically once I knew how to investigate it.
What is CIDP?
Crowdsourcing medical assistance is entirely valid, as long as you’re also seeking professional help. Medicine just doesn’t have all the answers, and sometimes “this works for me” is the best advice you can get when there’s nowhere else to turn.
I’m reminded of that old joke:
What do you someone who graduated bottom of their class at medical school?
“Doctor.”
Chronic Inflammatory Demyelinating Polyneuropathy.
Agreed.
Sucks. Sorry to hear that.
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